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May is ALS Awareness Month. Learn more about what you can do to end ALS with MDA . Map Find Care Heart Donate MenuJoin MDA A place where individuals and families are at the heart of everything we do. Our Story About MDA Our Impact MDA History FAQs Our Team MDA Leadership MDA Ambassadors Careers Resources Press Room Financials Quest Magazine Contact Us Neuromuscular Diseases Join MDA A place where individuals and families are at the heart of everything we do. Neuromuscular Diseases Full List of Diseases Amyotrophic Lateral Sclerosis (ALS) Charcot-Marie-Tooth Disease (CMT) Congenital Muscular Dystrophy (CMD) Duchenne Muscular Dystrophy (DMD) Emery-Dreifuss Muscular Dystrophy Endocrine Myopathies Metabolic Diseases of Muscle Mitochondrial Myopathies (MM) Myotonic Dystrophy (DM) Spinal-Bulbar Muscular Atrophy (SBMA) Spinal Muscular Atrophy (SMA) Care & Services Join MDA A place where individuals and families are at the heart of everything we do. 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Volunteer Get InvolvedBecome a Volunteer Volunteer Resources Advocate Become an Advocate Participate Participate in an Event Calendar of Events Start a Fundraiser Partner Become an MDA Partner Meet Our Partners Fire Fighters for MDA Join MDA Quest Media Join MDA A place where individuals and families are at the heart of everything we do. Quest Magazine Newsletter Podcast Blog Map Find Care Search Search Donate Close May is ALS Awarness Month. First Name Last Name Email A message from Donald S. Wood, PhD, President and CEO Rare neuromuscular diseases stand as some of the most challenging puzzles in science and medicine today. The rare nature of progressive muscle disease like muscular dystrophies, spinal muscular atrophy, ALS, and Pompe, coupled with corresponding gaps in public awareness and scientific investment, can present obstacles to research and access to treatments. But at the (MDA), thanks to your support, we’re tackling these challenges head-on and we’re seeing results! Our work has led to historic advancements in genetic research, improved diagnostic methods, multidisciplinary care, and the development of groundbreaking therapies that once seemed beyond reach. These scientific discoveries have wide-reaching applications for other more commonplace diseases and conditions, affecting millions of people across the globe. Together, we can surge past the limits of yesterday’s understanding and treatments. It’s your commitment, involvement, and support that are the forces that drive us forward. Thank you for your dedication to people living with neuromuscular diseases and to MDA’s mission. Mission Statement (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. For over 70 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. MDA’s mission is to empower the people we serve to live longer, more independent lives. Innovations in Science We are accelerating the delivery of treatments and cures. Explore the Science Innovations in Care We provide services that help people affected by neuromuscular disease. Experience the Care The freedom to walk, to talk, to run and play. To laugh, to hug, to eat — even breathe. Each day these freedoms are taken away from kids and adults with muscular dystrophy, ALS and related diseases that weaken muscle strength and limit mobility. Together we can change that. About Neuromuscular Diseases State or Zip Find MDA Care Centers Get Involved There are many ways to get involved with MDA. Whether you’re looking to create a fundraiser, host a game night, volunteer at a camp, run a marathon, or advocate for the cause, the ways to get involved are endless. Start a Fundraiser Become a Volunteer Start Your Monthly Gift of $19 today MDA Let’s Play for a Cure Advocate for MDA Ways to Get Involved Latest Stories For the latest happenings in the MDA community and to read inspiring stories, browse the MDA blog. Episode 41 - Courage Kindled: A Hero’s Unbreakable Spirit Nongenetic Factors May Increase Odds of Developing ALS Episode 40 - Unlocking Access and Inspiring Action with Sophie Morgan MDA Quest Media Product Guide Visit Our Blog Upcoming Events May 14, 2024 to May 15, 2024 @ 5pm-7pm ET Next Steps - Transition to Adulthood Register May 16, 2024 to May 17, 2024 Mike Bellotti’s Toast to Strength Gala and Golf Tournament Register May 19, 2024 Muscle Walk of Illinois Register Jun 6, 2024 Wings Over Wall Street Register See More Events Press Releases May 1, 2024 Dutch Bros to hold annual Drink One for Dane giveback Read More Apr 30, 2024 & IAFF Professional Fire Fighters of New Hampshire Announce 37th Annual Trans-New Hampshire Bike Ride June 21-23 MDA family member, Lilly who lives with a neuromuscular disease called Charcot-Marie-Tooth will be honored at the event. Read More Apr 29, 2024 Launches ALS Awareness Month with Public Service Announcement ‘Answering the Call’ Programming Throughout May Centers MDA Research, Care, and Advocacy Read More See Recent News Meet Our Partners These partners are empowering lives through science and care for MDA families. Meet Them All Join Us Sign up to receive email updates on volunteer opportunities and the impact you’re making for families. First Name Last Name Email MDA Resource Center: We’re Here For You Our trained specialists are here to provide one-on-one support for every part of your journey. Send a message below or call us at 1-833-ASK-MDA1 (1-833-275-6321). If you live outside the U.S., we may be able to connect you to muscular dystrophy groups in your area, but MDA programs are only available in the U.S. Request Information Close overlay Media Careers Donate Contact Us , Inc. 1016 W Jackson Blvd #1073 Chicago, Illinois 60607 800-572-1717 | ResourceCenter@mdausa.org Facebook Twitter YouTube Instagram The (MDA) is a qualified 501(c)(3) tax-exempt organization. ©2024, Inc. All rights reserved. Privacy Policy | Terms of Use | State Fundraising Notices Sign Up for MDA News & Updates First Name Last Name Email Facebook Twitter YouTube Instagram The (MDA) is a qualified 501(c)(3) tax-exempt organization. 2024, Inc. All rights reserved. Privacy Policy | Terms of Use | State Fundraising Notices Facebook Twitter YouTube...